Charlotte Figi, a girl with a rare form of epilepsy called Dravet syndrome and who helped normalize CBD use for chronic health conditions, died at the age of 13, according to the Realm of Caring Foundation, on Tuesday. She died from complications due to COVID-19, according to the Colorado Sun.

Figi was born with Dravet syndrome, a rare form of epilepsy that develops in the first year of life. It causes repeated seizures and typically doesn’t respond to existing epilepsy medications. Dravet syndrome can lead to other complications, including developmental disabilities. Figi’s parents shared she could have as many as two seizures an hour at its worst Figi was nearly out of treatment options when her father saw another child with Dravet syndrome responded to CBD.